Objectives:
To contribute towards development of Public Policy and take part in implementation, such as Rare Disease Policy and Orphan Drug Policy.
To collaborate with advocacy organizations from India, and people living with rare diseases; working jointly to connect them with national & international forums such as NORD, EURORDIS, RDI, Global gene, UDN, etc.
To accelerate diagnosis and treatment options for patients with rare diseases through public-private partnerships, and by advocating mandatory New Born screening·
To Facilitate & encourage Clinical Trials , Research & Orphan drug development activities.
