Patients and Families
Are you or someone you know affected by a rare disease, condition or disorder? Are you having difficulty diagnosing or dealing with a rare condition? Are the usual doctors unable to help you?
We at ORDI are committed towards creating accessible gateways and resources for our Rare Disease community.
RD Helpline
The first nationwide Rare disease Helpline # +91 8892 555 000 in India to provide information and advice to patients with rare diseases needing medical or non-medical assistance. The helpline is the first line of interface between the organization, patients and even doctors.
RDCCC
Our very first RDCCC (Rare Disease Care Co-Ordination Centre) in Bangalore, India, aims to build critical infrastructure to connect patients with Rare Diseases and Healthcare providers, disease area medical experts, recognized diagnostic centers, genetic counselors, caregivers, treatment options, national and international clinical trials and funding options where feasible.
Exclusive Day Care Centre ORDI towards its care for the patient community has set up India’s First Exclusive day care center for Rare Disease patients in India. Our Day Care center Bangalore, India caters to weekly / fortnightly treatments of Rare Disease patients, such that the parents and patients can relax comfortably while taking treatments.
Free Genetic Counseling
For select patients, we support the families by offering free Genetic counseling services. It is critical to diagnose Rare Diseases early with the help of Medical Experts. A delayed diagnosis may lead to delay in treatment.
Clinical Trials
One of ORDI’s mission is to enable patients with information and resources regarding clinical trials on Rare Diseases. We, at ORDI are committed towards better healthcare and treatment opportunities for our Patient Community.
Therapy and Treatments
For families who cannot afford treatments and therapies, ORDI provides such patients with opportunities to access treatment at affordable rates/ or sponsored treatments.
