Shital Bhatkar – Volunteer, Mumbai
Shital Bhatkar a momprenuer all the way. Mother to a beautiful girl and a son. Her son Aarya, suffered from a rare disease niemann pick and succumed to the disease 5 yrs back. Her struggle with the disease led her to start an NGO “Withaarya” in 2010. The idea was to create an awareness and help patients suffering from lysosomol rare disease. Withaarya is based out of mumbai and is connected to the patients admitted at KEM Hospital.
Withaarya expanded further and now serves meal daily to 300 patients and their caregivers outside KEM Hospital.
The NGO also provides medical assistance monetarily.
Jaya Srivastav – Gujarat Coordinator
You can never leave footprints that last if you are walking on tiptoes!” ~Leymah Gbowee
I spent a great part of my life tip-toeing, but always carried a strong desire to create an impact by making the difference.
28 years spent as an employee in the corporate world, I finally made the first imprint when I left the comfort zone and chose to be a freelance trainer, influencing and making a difference in young professionals’ life. Armed with my skill sets, rich experience I stepped up my game – from being a player, I decided to be the coach and guide drawing from diverse work experience in the service industry, & strong people skills!
And then a chance meeting with a Rare warrior in 2016, when i didn’t understand or wasn’t even fully aware of the R of Rare, led to the next imprint by being connected with ORDI. This chance meeting developed with baby steps which manifested in execution of the first Racefor7 in Gujarat state!
I was fortunate to have several ex-colleagues, friends and family believe & join in the cause! The first event was a success with 400+ registrations and we are going from strength to strength and hoping to create many more footprints leaving a permanent impact and improve awareness and quality of life for our Rare Warriors!
Kavitha George – Mumbai Coordinator
With over fifteen years of leadership experience across sectors, Kavitha George is a training and operations specialist, who is passionate about creating an inclusive eco- system for children with special needs.
She focuses on education and training programs for parents, educators and caregivers of children with special needs.
She is a certified Personal Counselor. She has numerous certifications which include, Diploma in Learning Disorder Management and Child Psychology (Singapore), Certification in HANDLE Course (Australia), Certification in Adapted Yoga (Canada), International Certification Course on Autism and Certification in Autism Movement Therapy.
She currently lives in Mumbai with her husband and three children, one of whom is a special child.
Ms. Sushma Patil – Ahmedabad, Gujarat, Maharastra Coordinator
Ms. Sushma Patil is a level II certified Genetic Counselor by Board of Genetic Counselors India (BGC). She has more than five years of experience. Her passion for being of service to the society along with scientific interest in genetics inspired her to pursue a career in Genetic Counseling. Continuing her interest in creating awareness regarding application of genetics has led her to cater to genetic counseling requirements not only in cities like Mumbai and Pune but also to smaller cities like Nashik and Aurangabad.
Education:
- PG certificate course in Medical and Genetic Counseling, Kamineni Education Trust, Hyderabad (2013- 2014)
- Master of Science, Biomedical Genetics, VIT University, India (2011-2013)