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Our Co-Founder Mr. Prasanna Shirol and His wife Mrs. Sharada Shirol Visited Pompe Patient in Bijapur.

Our Co-Founder Mr. Prasanna Shirol and His wife Mrs. Sharada Shirol Visited Pompe Patient in Bijapur....

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Celebrating Sankranti

Our director Prasanna shirol and Sharada shirol today celebrated Makara Sankaranti by visiting Mr Balakrishanas house and his son Purishottam who is diagnosed with MPS . Both Mr Balakrishna and...

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Rare disease screening camp

ORDI was part of Mega Health Check Up Camp organized by Mr Atin Ghosh Member West Bengal Legislative Assembly. This was a free of cost mega Health Check up camp...

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Prader-Willi Syndrome Scientifics & Family Conference

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REDRESS-2023

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Upanyasa Shibira

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A talk By Mr. Prasanna Shirol @ Air Bus Corporation

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ISP Program on NF 1@ Thiruvananthapuram

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ISP Program on NF 1@KEM

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100@ IGICH

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Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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