NOTICE: If you have a medical emergency, please contact your nearest hospital. This helpline should not be considered as formal medical advise. It is for informational purposes only.
When you call the national helpline number, a rare disease specialist will
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
