We appreciate the kind assistance of Ms.Shruti Mohanty, Ms.Tulisa Samantaray, and Ms.Ushneet Chhabra, MSc BMG, VIT, Vellore for the posters on SATB2 Associated Syndrome Awareness...
We acknowledge the kind assistance of Ms. Poorva Samdani,Ms. Vaishnavi. R, MSc. BMG, VIT, Vellore for the poster on Smith Kingsmore Syndrome Awareness...
We acknowledge the kind assistance of Ms. Anandi Shivaram and Ms. Panchami P, MSc. BMG, VIT, Vellore for the poster of Severe Myalgic Encephalomyelitis Awareness...
8th August is celebrated as the #Chromosome8p day, a rare chromosomal disorder caused by deletion of a part of chromosome 8. Let’s join hands in spreading awareness about this disorder...
31 st of July is marked as the Acute Nectrotizing encephalopathy or #ANEawareness day. This day aims to spread more awareness and better understanding about this rare disease so that...
We appreciate the kind assistance of Shruti Mohanty, Ushneet Chhabra, Anushka Priyadarshini Chatta, Tisha Kalpeshbhai Desai and Tulisa Samantaray.MSc BMG, VIT, Vellore for the poster on Autoimmune...
We appreciate the kind assistance of Ms. Sayantani Sarkar, Ms Kajal Kumari, Mr. Shilpa Sucharita and Ms. Saptaparni Dutta, students of MSc Biomedical Genetics at VIT, Vellore for the poster...
Each year the month of July strives to raise awareness about what is known as the “forgotten cancer”. Let us all join our hands in the fight against Sarcoma and...
Juvenile Idiopathic Arthritis is a rare disease that affects children under 16 years; impacting approx. 1 in 1000 children.Early recognition of arthritis is extremely important for better life quality.Unite with...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
