Today is World Sjögrens Day; it was established by the Sjögren Syndrome Foundation more than a decade ago, today is also the birthday of Dr. Henrik Sjogren. Join us in...
World Castleman Disease Day, celebrated on July 23, continues to be the one day a year for the patients, researchers, physicians, supporters and loved ones across the globe to unify...
12th of July is marked as Heterochromia Awareness Day, and it aims at providing people with the right knowledge about the condition and debunking myths surrounding it. We appreciate the...
We appreciate the kind assistance of Ms. Sailakshmi Iyer, MSc BMG, VIT, Vellore for the poster on Cord Blood Awareness...
We appreciate the kind assistance of Ms. Anandi Shivaram, MSc BMG, VIT, Vellore for the poster on Helen Keller Deaf-Blind Awareness...
We appreciate the kind assistance of Ms. Sayoni Chatterjee, MSc BMG, VIT, Vellore for the poster on International Scoliosis Awareness...
We appreciate the kind assistance of Ms. Sailakshmi Iyer, MSc BMG, VIT, Vellore for the poster on Champ 1 Syndrome...
World Vitiligo Day aims to raise awareness on #Vitiligo, a rare condition. Join us in breaking barriers and embracing the vitiligo warriors. #WVD2021. We appreciate the kind assistance of Ms....
We appreciate the kind assistance of Ms. Sailakshmi Iyer, Ms. Anandi Shivaram, and Ms. Dhanushya, MSc BMG, VIT, Vellore for the poster on Dravet Syndrome Awareness. Visit This...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
