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Heterochromia Awareness Day-12th July 2021

12th of July is marked as Heterochromia Awareness Day, and it aims at providing people with the right knowledge about the condition and debunking myths surrounding it.

We appreciate the kind assistance of Ms. Vaishnavi R and Ms. Poorva Samdani, students of MSc Biomedical Genetics at VIT, Vellore for the poster on Heterochromia Awareness.

Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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