Helpline
+91 8892 555 000
Email : contactus@ordindia.in

372

Treatment Facilitated to Patients

284

Treatment Facilitated to Patients (Value in Rs. In Crores)

8250

Patients Associated

3300

Doctors Supported our events

410

Volunteers

40300

Race For 7 Mass Awareness Participants

160

Webinar Series - Sessions

6500

Participants For Webinar Series

2084

Advocacy Interactions with Policy Makers

11500

Calls to Helpline

Welcome to ORD India

A Better Life for people with Rare Diseases. ORDI (www.ordindia.in) is a national umbrella organization representing the collective voice of all patients with rare diseases in India, setup as a section 25 non-profit company in India.

 

Vision:
A Better Life for people with Rare Diseases.

 

Mission:
ORDI’s mission is to be the strong united voice for all rare diseases in India, to reduce inequalities and ensure that people living with rare diseases have access to the same resources as any other population
Mission

Objectives:

  1. To promote Rare Diseases as human rights priority through public awareness.
  2. To contribute towards development of Public Policy and take part in implementation, such as Rare Disease Policy and Orphan Drug Policy.

  3. To collaborate with advocacy organizations from India, and people living with rare diseases; working jointly  to connect them with national & international forums such as  NORD, EURORDIS, RDI, Global gene, UDN,  etc.

  4. To accelerate diagnosis and treatment options for patients with rare diseases through public-private partnerships, and by advocating mandatory New Born screening·

  5. To Facilitate & encourage Clinical Trials , Research & Orphan drug development activities.

ORDI Webinar Series
Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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