For all major diseases, early detection is key to improving treatment outcomes. However, when it comes to rare diseases, it is unpredictable, making it more challenging to diagnose. In such a...
High drug costs and persistent treatment gaps are pushing many people living with rare diseases toward irreversible disease progression, often long before effective therapies become accessible. According to Prasanna Shirol,...
Rare diseases are medical conditions that individually affect a small proportion of people but when seen collectively, show a massive global health concern. In fact, 1 in 20 Indians are...
The kids are all right. They might just be a little too all right. While most grown-ups spent their 20s and 30s thinking they’re invincible (and focused on health only after...
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Karnataka Health Minister Dinesh Gundu Rao announced that the state’s Rare Diseases Policy will be released shortly, reaffirming the government’s commitment to strengthening support for patients living with rare conditions....
Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...
The Organization for Rare Diseases India (ORDI), a national patient advocacy organization committed to addressing challenges faced by people with rare diseases in India, hosted the 11th edition of its flagship...
Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children. Rare...
