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From Rs 77,000 to Just Rs 600: India Manufactures World’s Cheapest Drug to Treat Sickle Cell Anaemia

Akums Drugs & Pharmaceuticals, aligning with the Narendra Modi government’s vision of eliminating sickle cell anaemia, has slashed the price of its key drug by 99 per cent. The firm...

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COLLABORATE Summit 2023

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25...

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ORDI News letter Nov 2023

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ORDI Press Statement

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ORDI News letter Oct 2023

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ORDI News Letter Sept 2023

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ORDI News Letter August 2023

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New GAA mutations linked to infantile-onset disease

Three new mutations in the GAA gene were linked with heart disease and severe breathing problems in infants with infantile-onset Pompe disease (IOPD) in Malaysia, a study reports. “The novel mutations identified in this...

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Gene therapy: Human trials to begin in Karnataka for treatment of genetic disorders

Gene therapy work was started 10 years ago under the guidance of founder and former chairman Dr K Bhujang Shetty. BENGALURU: Gene therapy human trials will be initiated in India for...

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ORDI Newsletter June 2023

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Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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