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Email : contactus@ordindia.in

Useful Information / Downloads

1. ORDI Registration Form

Webinar on Need of Disability Certificate for Rare Disease Community – By ORDI -PAG Advocacy Committee
Meeting Date : 17.1.2021
Moderator : Mrs  Kirtidaben
Speakers: 1) Dr Vaishali Pai,  2) Mr Anand 3) Mr Samir Sethi
Discussion Points :  Need of Disability Certificate for Rare Disease Community, Benefits and Process to apply for this certificate.
This webinar on Disability Certificate for all members of the Rare Diseases community. This certificate is a recognition of the need to get special support and assistance from all quarters. This certificate also entitles benefits from pension, insurance, income tax rebates etc and should be obtained by all.
Video Link of the Discussion :

2. Order Drugs (Price Control ) Amendment Order 2019

About Health Insurance:

This is to inform you that, IRDA has directed to all the Health Insurance companies that ” No claim in respect of any existing Health insurance policy shall be rejected based on exclusion related to ” Genetic Disorder” and not to include “Genetic disorder” in as exclusion criteria new health care policies.
In case if you have any such instance please inform/contact ORDI ( contactus@ordindia.in) with necessary documents and we shall happy to take up the issue with concerns authorities.

  • Procedures To Import Small Quantities Of Drugs For Personal Use:

             a. Download the application in FORM 12 A

            b. The prescription from Registered Medical Practitioner (RMP) in respect of the drug        requirements for the  purpose of patient use required to be attached. The prescription shall bear Medical Council of India (MCI) Registration No. of the Physician.

            c. Fill and sign the application in Form 12A along with the Prescription and submit to ADC(I)/TO/DI of the respective port offices of Central Drugs Standard Control Organization (CDSCO).

          d. No fee is required under the Rule for said purpose.

          e. The name of the drug, the quantity of the drug and duration of medication shall be clearly mentioned in the Prescription.

         f. Permission in FORM 12 B shall be issued to applicant on priority basis preferably in a day or two.

         g.Online Application link:
https://cdscoonline.gov.in/CDSCO/viewForm12A
For more details: Visit -http://cdsco.nic.in/forms/list.aspx?lid=1852&Id=30

Note:
In case of delay or further clarification, following officer are designated at the Secretariat of DCG (I),    CDSCO (HQ), FDA Bhawan, Kotla Road, New Delhi. 110002.
Contact No.:  011-23236965;    Email id: dci@nic.in

Disclaimer: The information published is for quick information only and for details you are requested to check the respective website for latest, updated and for more information.

3. Guidance on transfer of human biological material for Research purposes/Commercial purposes

https://main.icmr.nic.in/content/transfer-biological-material

Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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