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Champ 1 Syndrome Awareness Month June 2021

 

We appreciate the kind assistance of Ms. Sailakshmi Iyer, MSc BMG,  VIT, Vellore for the poster on Champ 1 Syndrome Awareness.

Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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