Click the link for website: https://www.thehindu.com/news/national/disquiet-over-govts-new-policy-for-rare-diseases/article34225606.ece...
It’s because of the combined efforts that we are able to amplify the Rare Voices and move towards the much-required #hope. #rarediseaseday is coming on 28th Feb. Join us in this...
Help us Raise Awareness for Alport Syndrome, a Rare Inherited Disorder that progressively affects the life of those affected. Care for Rare, Participate in spreading awareness and...
ORDI brings you its annual event “Race For 7” on 28th February 2021 through a Virtual platform creating awareness on Rare Diseases. You can Run/Walk from whichever place that you...
May the Lohri fire burn away all the sadness out of your life and bring you joy, Happiness, and Love. Wishing a Very Happy Lohri to You and Your Family...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
