Help us Raise Awareness for Alport Syndrome, a Rare Inherited Disorder that progressively affects the life of those affected.
Care for Rare, Participate in spreading awareness and smiles!
Awareness for Alport Syndrome
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
