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Duchenne Muscular Dystrophy – Sarthak Gowri

Duchenne Muscular Dystrophy Sarthak Gowri and His Wonderful Family A Memorable trip to...

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Sturge Weber Syndrome – N Vinayak Venkateshwar

How Chandra solved the mystery of his missing baby brother! [ Narrated by the parents Geetha and ‘Nary’ Narayanaswamy] We visited the US East Coast about five years ago. We...

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Upcoming Events

Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.

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