Surbhi Manocha Choudhary, A #RareDisease Warrior living with #HUVS has broken all #odds to make it to the finals of #MrsFemina. On behalf of Rare Disease community, @ORDIndia.in wishes her...
MVS Sampreet, who has been affected by Duchenne muscular dystrophy (DMD) since birth, is pursuing his MBA from IIM Bangalore. He completed his under graduation from Shri Ram College of...
Rare Disease Warrior; Dr. Sarthak Kamath , during his graduation ceremony was honored today with awards from Dr. Sudhakar, Minister of Health and Family Welfare, while Principal of KIMS, Dr....
LIVING WITH A RARE DISEASE Hello everyone, I am Sarthak Gawri and I am suffering from a rare disease called Duchenne Muscular Dystrophy. It affects muscle strength of the whole...
I know to Eat!!! Hurray!!! By Harish Ravishankar Another milestone to share!!! Over the last few days, we are seeing Manasvini (5+ years now) trying to pick crispy food items...
Digging Deep After 21 years of struggling with my condition, I finally got my diagnosis – Cystic Fibrosis. There were many dark days with doctors giving me not more the...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
