MVS Sampreet, who has been affected by Duchenne muscular dystrophy (DMD) since birth, is pursuing his MBA from IIM Bangalore. He completed his under graduation from Shri Ram College of Commerce (SRCC) and wishes to contribute to the rare disease community and the society at large by volunteering in organisations with the same goals.
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
