8th August is celebrated as the #Chromosome8p day, a rare chromosomal disorder caused by deletion of a part of chromosome 8. Let’s join hands in spreading awareness about this disorder on this day and cheer for the #8pheroes!
We acknowledge the kind assistance of Ms. Panchami P, MSc. BMG, VIT, Vellore for the Chromosome 8p awareness day.
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
