31 st of July is marked as the Acute Nectrotizing encephalopathy or #ANEawareness day.
This day aims to spread more awareness and better understanding about this rare disease so that people across the globe have the right knowledge and work in unity to bring a better change
We appreciate the kind assistance of Ms. Anjali Pathak, Mr. Devaiah PC, and Ms. Srijoni Sikdar, MSc BMG, VIT, Vellore for the poster on Acute Necrotizing Encephalopathy
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
