Hope for Rare Disease Patients in Bengaluru!
The Organization for Rare Diseases India (ORDI) and St. John’s Medical College Hospital (SJMCH) are proud to announce a collaboration to empower rare disease patients and their families in Bengaluru!
Through this partnership, we will:
-Establish a Rare Disease Care Coordination Center (RDCCC): This dedicated center within SJMCH will be a one-stop care center for patients and families.
-Offer Comprehensive Support: The RDCCC will provide guidance on:
-Awareness: Raising awareness about rare diseases and their symptoms.
-Prevention: Helping identify and potentially prevent rare diseases where possible.
-Management: Effective management strategies to improve the quality of life for patients.
-Education: Equipping patients and families with knowledge about their specific condition.
-Treatment: Connecting patients with the most appropriate treatment options.
This collaboration signifies a significant step forward for the rare disease community in Bengaluru. Together, ORDI and SJMCH aim to provide much-needed support and hope to patients and their families.
We are excited to share this journey with you!
Congratulations and Thanks you…
Dr. Maya Mascarenhas, Dr. Arpana Iyengar, Dr. Priya Pias, Fr. Jesudoss Rajamanickam (Director, SJMCH), Mr. Prasanna B Shirol (Executive Director, ORDI), Mr. Madhan Gopal, Mr. Prakash Lobo, Mr. Sachin Mulgund
