National Agenda on Rare Diseases:
- To review the current situation of rare diseases in India and define rare diseases in the Indian context
- To establish norms for laboratories/ centers for diagnosis of rare diseases.
- To recommend the design for creation of a national registry system for rare diseases
- To suggest funding mechanisms for dealing with rare diseases
- To recommend measures to create awareness among the general public regarding prevention and management of rare diseases.
- To frame a draft national policy for rare diseases in India.
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