The Organisation for Rare Diseases India (ORDI), a not for profit organisation committed to address the challenges of rare disease patients and their families, in association with JSS Academy of Higher Education and Research and JSS Hospital, Mysuru, has organised the second edition of Racefor7 at Mysuru, a multi-city Run or Walk to raise awareness for rare disease patients in India, tomorrow (Mar.8). Announcing this at a press meet yesterday, JSS Hospital Genetic Counsellor Dr. Deepa Bhat said that the event will be flagged off tomorrow, from Balarama Gate at Mysore Palace at 6.30 am. Racefor7, symbolically representing 7,000 rare diseases and the average of 7 years it takes to diagnose a rare disease, is a one-of-a-kind event for rare diseases in the world with 7,000 people running or walking 7 kilometres. This year’s rare disease theme is ‘Reframe Rare for Rare Disease Day’ with the message that ‘Rare is many, rare is strong and rare is proud!’ The campaign message retraces perceptions of what it means to be ‘rare’ so that no one is left behind in achieving greater equity. For registration, contact Mob: 99807-44332.
