ORDI (www.ordindia.in) is a national umbrella organization representing the collective voice of all patients with rare diseases in India, setup as a section 25 non-profit company in India.
Vision:
A Better Life for people with Rare Diseases.
Mission:
ORDI’s mission is to be the strong united voice for all rare diseases in India, to reduce inequalities and ensure that people living with rare diseases have access to the same resources as any other population
Objectives:
- To promote Rare Diseases as human rights priority through public awareness.
- To contribute towards development of Public Policy and take part in implementation, such as Rare Disease Policy and Orphan Drug Policy.
- To collaborate with advocacy organizations from India, and people living with rare diseases; working jointly to connect them with national & international forums such as NORD, EURORDIS, RDI, Global gene, UDN, etc.
- To accelerate diagnosis and treatment options for patients with rare diseases through public-private partnerships, and by advocating mandatory New Born screening·
- To Facilitate & encourage Clinical Trials , Research & Orphan drug development activities.
