“Dear ORDI Team,
I would like to sincerely congratulate and appreciate your continued efforts in advocating for rare disease families across India.
The recent announcement regarding full coverage of secondary complications under the AB-Ark scheme and the commitment toward a Karnataka State Rare Disease Policy is truly a historic milestone. These developments bring not only financial relief but also emotional strength and hope to families like ours who live with rare conditions every day.
As a member of the rare disease community and someone personally affected, I understand how critical policy-level changes are. Your persistent advocacy, awareness programs, and collaboration with the government are creating real, structural change.
I want to express my gratitude for your dedication and assure you that I stand ready to support awareness initiatives in any way possible — whether through community outreach, social media advocacy, or participation in events.
Thank you for being a strong voice for rare disease families.
With appreciation and respect,”
-Hemanth Gowda, SMA Type 2
(Referred WhatsApp Date: Tuesday, 03rd Mar 2026)
” Dear ORDI Team,We have received the necessary metabolic reports for which you offered help and successfully started treatment of patient Harshan G. We would like to thank you for your timely help and quick response in need.The patient has been registered under ORDI and the family conveyed their gratitude as well for the helpWe truly appreciate the invaluable work you do for patients of rare diseases and their families “
“As per your recommendation, we met Dr. Krati Shah at her clinic at Ahmedabad on last Tuesday. The visit was very fruitful and she supported us very well and assured us that she would be available for 24 hours for any kind of support and guidance. She will also update us from time to time for further treatment. The press note cutting provided by you was also very supportive and encouraging to patient and family as well. We are very much indebted to you for all your support and guidance and thankful to you for your efforts in this noble cause.”
(Referred email Date: Thu, 26 Feb 2015)
Click below link
https://racefor7.com/testimonials/
