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October is Gaucher Awareness month. 25th Care for Rare Session with Dr. Sanjeeva

25 sessions of heartwarming Care for Rare . This momentous victory couldn’t have been achieved without our guest speakers, engaging audience members, support groups, volunteers & sponsors. Thank you all...

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Dr Nagabhushan Rare Talk

World Ostomy Awareness Day marks the mission to break stigma on Ostomy, and celebrates the warriors living with it. In this interview, Dr. Nagabushan, a GI Expert and a Colorectal...

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Rare Disease Clinical Research: Challenges and Solutions to conduct studies in rare disease indications

ORDI Care for Rare Webinar with Dr. Ali Smyth from IQVIA, the leaders in Clinical Trials, for a session on Rare Disease Clinical Research, to gain insights on challenges &...

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Clinical Trials for Rare Diseases: What Patients & Caregivers Need to Know

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The inspiring journey of Dr. Radha Rama Devi

Stay tuned for the inspiring journey of Dr. Radha Rama Devi, the Trendsetter of Newborn Screening in India. Watch her talk about the obstacles she endured to achieve her “far-fetched”...

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Genetic Diseases of the Retina:Current Status

Early Diagnosis and Visual Aids can significantly help in managing loss of eyesight in RP Patients; a disease that is comparatively common in India. Join us for insights at the...

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Battling for Genetic Counseling: The Promises and the Perils

Have we traveled far enough in understanding the importance of timely screening and the opinions of a genetic counselor; a profession that demands expertise in Empathy par Genetics? Dr. Dipanjana...

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Understanding Cilia and Ciliopathies

Who knew that a cell organelle as tiny as cilia could be involved in congenital heart disease and polycystic kidney disease? Dr. Sudipto Roy walks us through understanding cilia and...

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Championing the Odds, A Rare Talk by Avantika Shrivastava with DMD Warrior Dr. Sarthak Kamath.

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Chronic Pain: Its Physcological Impact and Coping Mechanisms

Chronic pain impacts daily lives and confidence; it creates anxiety for those who live with and around it. Acceptance, Awareness, and Empathy are very important. Join us with Dr. Anubha...

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