Ms. Alma Chopra Different-ability Awareness Activist & Inclusion Ambassador | Motivational Speaker | Life Coach | Cerebellar Ataxia Conqueror A powerful voice in the rare disease community, Alma shares her...
In this episode of ORDI’s Rare Info Series, we explore Hemophilias — from genetics to therapy, shedding light on the science behind this rare bleeding disorder and the advancements in...
Speaker: Ms. Vaishali Pai Founder–Director, Tamahar Trust (since 2009) Moderator: Mr. Nadir Aman Sr. Genetic Counselor & Geneticist, West Bengal Early identification and timely intervention play a crucial role in...
In this episode of ORDI’s Rare Info Series (Episode #31), we explore the topic — “RARE INFO SERIES – Episode #30 Join us as Dr. Radha Rama Devi, Senior Consultant...
Join us as we explore the fascinating world of genetics and unravel the mysteries behind imprinting disorders. Understanding these rare conditions is a crucial step toward early diagnosis and better...
“Empowering our Teens for Independence and Health” “Support, Aid & Resources for CF Families” 👩⚕️ Speakers 🔹 Dr. Aanchal Khemani – Paediatric Pulmonologist, Manipal Hospital, Bengaluru 🔹 Mr. Prasanna Shirol...
🎤 Speaker: 👩⚕️ Dr. Supriya Suresh Shinde Paediatric Pulmonologist & Sleep Specialist, Manipal Hospital, Bangalore 👥 Moderators: 👨⚕️ Dr. Pallab Chatterjee – Consultant Pediatrician, Apollo Multispeciality Hospital, Manipal Hospital, Fortis...
In this episode of the Rare Info Series, we discuss “Feeding right to Fight CF: Nutrition and Pancreatic Care”, focusing on the vital role of nutrition in supporting growth and...
Clinical trials are a vital part of advancing treatment options for rare diseases. In this episode of the ORDI Rare Info Series, we explore the basics of clinical trials, the...
Welcome to another episode of the Rare Info Series by the Organization for Rare Diseases India (ORDI). In this episode, we discuss Airway Clearance and the importance of Chest Therapy...
