Inherited Metabolic Disorders (IMDs) may be rare, but their impact is profound—especially in children. In this episode, we explore how small genetic changes can disrupt essential metabolic pathways, leading to...
🩸 In this episode of ORDI’s Rare Info Series, we explore India’s ongoing battle with Sickle Cell Disease—a critical public health issue with deep genetic roots, affecting thousands across the...
🫁 In this episode of ORDI’s Rare Info Series, we delve into the essentials of Home Mechanical Ventilation—a vital support system for patients with chronic respiratory conditions, especially children with...
🩸 In this episode of ORDI’s Rare Info Series, we explore the comprehensive care strategies essential for managing Haemophilia—a lifelong bleeding disorder that requires timely diagnosis and multidisciplinary care. 🔍...
In this episode of ORDI’s Rare Info Series, we delve into the nutritional strategies essential for managing Congenital Hyperinsulinemic Hypoglycemia (CHI)—a rare but critical condition affecting infants and young children....
🎙 Speaker: Prof. (Dr.) Prantar Chakrabarti MD (Med), DNB (Med), DM (Clinical Hematology) Consultant Hematologist – Zoho Corporation 🗣 Moderator: Dr. Nita RadhaKrishnan Additional Professor, Head of the Department of...
RARE INFO SERIES – Episode #04 Topic: Shattered Platelets & Struggling Kidneys – The HUS Puzzle Unraveled! In this gripping episode of the Rare Info Series from ORDI (Organization for...
In this enlightening episode of the Rare Info Series by ORDI (Organization for Rare Diseases India), we take a deep dive into Alport Syndrome—a rare genetic condition that affects the...
In this powerful episode of the Rare Info Series by ORDI (Organization for Rare Diseases India), we explore how clinical genomics is transforming the diagnosis and management of heart failure,...
Welcome to the first episode of ORDI’s Rare Info Series, where we bring real stories, scientific insights, and community voices together to raise awareness about rare diseases. In this episode,...
