Lysosomal storage disorders are easily mistaken for metabolic disorders thus increasing the time taken for timely diagnosis. The first step to Identify Lysosomal Storage Disorders is by proper screening. To...
It’s easy to forget your strength and who you truly are because of the world we live in. Lets us learn with Ms. Arouba Kabir an experienced counsellor & cystic...
Often NICU sick babies are treated for sepsis and other more common problems, however, more than often the clinical presentation can be disguised as a more grave problem of metabolic...
Epilepsy in children is a neurological disorder with significant psychosocial burden to families. In a country like India, huge treatment gap, education and stigma needs a well established approach for...
New born screening is an important tool in better preparing ourselves for living the rare life. Join us in another ORDI webinar to understand why and how, as Paediatrician and...
Living with DMD & Neuromuscular Disorders During A Pandemic Webinar Series with Dr Ann Agnes...
Comments From Participants: Keep up the good work ORDI. We could meet Wonderful personalities – Samhitha N Appreciate for an excellent talk! – Dr. Radha Dayanidhi Thanks to ORDI for...
Comments from Particpants: Wonderful presentation Dr. Bhat. Thank you Mr Prasanna Shirol Sir and ORDI team for organizing the session. -Niketa Pawar Well done the people of Karnataka....
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
