Topics:- 1)Duchenne Muscular Dystrophy. 2)Congenital Myopathies. 3)CMD & LGMD. Link For The Original Site:-...
Topics:- 1)Spinal Muscular Atrophy. 2)An approach To Neuropathies And Newer Therapies. 3)Congenital Myasthenia Syndromes. Link For The Original Site:-...
25 sessions of heartwarming Care for Rare . This momentous victory couldn’t have been achieved without our guest speakers, engaging audience members, support groups, volunteers & sponsors. Thank you all...
ORDI Care for Rare Webinar with Dr. Ali Smyth from IQVIA, the leaders in Clinical Trials, for a session on Rare Disease Clinical Research, to gain insights on challenges &...
Early Diagnosis and Visual Aids can significantly help in managing loss of eyesight in RP Patients; a disease that is comparatively common in India. Join us for insights at the...
Have we traveled far enough in understanding the importance of timely screening and the opinions of a genetic counselor; a profession that demands expertise in Empathy par Genetics? Dr. Dipanjana...
Who knew that a cell organelle as tiny as cilia could be involved in congenital heart disease and polycystic kidney disease? Dr. Sudipto Roy walks us through understanding cilia and...
