ORDI Co-Founder Dr. Harsha Rajasimha organized the first official ORDI USA event at Inchin Bamboo Garden, Herndon, VA. About 12 friends of ORDI participated and donated for the cause on...
ORDI – Co founder Mr Prasanna Kumar B Shirol participated in Bangalore INDIA BIO Conference, as a speaker in discussion on Rare Disease and Orphan drug held between 9th to...
ORDI in association with Tamahar and Dystrophy Annihilation Researc Trust, celebrated “Rare Children’s Day 2015” at Canara Union, Bangalore. It was a remarkable event to mark our tribute to the...
Organization For Rare Disease India in association with Genomme Medical Center & Club of Coimbatore (East) had organized the First and Unique camp for Mass Screening of Rare Genetic Disease....
Dr Vijay Chandru – Founder Member -ORDI speaking at the Indo-US Conference – Realizing the Potential of Rare Disorders in India on 7th -9th Sept...
National CME on Primary Immunodeficiency,PID on 22nd August 2015. Organized by PG Department of pediatric SVPPGIP, SCD College, Cuttack. In collaboration with Indian Patients Society For Primary Immunodeficiency...
Celebrated Baby Kusuma’s birthday on 27th august 2015 at Vardhaman Pharmaceuticals & attended by 30 business people, Mr Prasanna Kumar Shirol was invited to address the team on his journey...
Duchenne Muscular Dystrophy Awareness Day, on 7th September 2015. On account of which on Sunday 6th September 2015 there was a celebration organized by DART(Dystrophy Annihilation Research Trust) at Bangalore....
First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person...
Our Executive Director Mr. Prasanna Shirol was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates, healthcare professionals, and healthcare policy experts. This is a short video highlighting the impact of the initiative to date, in the words of the COLLABORATE Community.
