Our Co founder and Executive director Mr. Prasanna Shirol, Participated in a meeting of the Patient Advocacy groups for Rare Diseases regarding the ‘Brainstorming for Rare Diseases in India’ which was scheduled...
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We, the Rare Disease Community members, Patients, and Caretakers stand together to salute our nation’s independence day! We express our gratitude for the support and solidarity that the Rare Disease...
