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Article On ORDI in Kannada(Karma Veera Magazine)

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Meet Prasanna Shirol, Founder and President of the Organization For Rare Diseases India.

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INDIA’S 75th INDEPENDENCE DAY

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Celebrating 75th Independence Day With ORDI.

We, the Rare Disease Community members, Patients, and Caretakers stand together to salute our nation’s independence day! We express our gratitude for the support and solidarity that the Rare Disease...

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Angelman Foundation India Is Now A Member Of Ordi

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Global ALS Awareness Day June 21st

On global ALS awareness day june 21st June, Crafted a small clip to create awareness and to launch the promo of the movie “dear zindagi” of our upcoming ALS Care...

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Three kids get life-saving Rs 16-crore injections for free at Bengaluru hospital

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Scientific Advisor of ORDI Dr Sudheendra Rao had participated in a Panel Discussion on Changing Scenario in Muscular Dystrophy Treatment held by Mind Trust

Glad to share that today I participated in a #PanelDiscussion on #ChangingScenarioinMuscularDystrophyTreatment held by #MINDTrust (Mobility in Dystrophy, #Kerala). I was joined by Dr. Arun Shastry of Hanugen Therapeutics, Prof...

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ORDI x AOCN Webinar series on Rare Disease in Pediatric Neurology

We are incredibly happy to share that AOCN, Association of Child Neurology and ORDI, Organization for Rare Diseases India have planned a series of weekend Symposia on “Rare disease in...

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