Gallery

Angelman Foundation India Is Now A Member Of Ordi

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Global ALS Awareness Day June 21st

On global ALS awareness day june 21st June, Crafted a small clip to create awareness and to launch the promo of the movie “dear zindagi” of our upcoming ALS Care...

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Three kids get life-saving Rs 16-crore injections for free at Bengaluru hospital

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Scientific Advisor of ORDI Dr Sudheendra Rao had participated in a Panel Discussion on Changing Scenario in Muscular Dystrophy Treatment held by Mind Trust

Glad to share that today I participated in a #PanelDiscussion on #ChangingScenarioinMuscularDystrophyTreatment held by #MINDTrust (Mobility in Dystrophy, #Kerala). I was joined by Dr. Arun Shastry of Hanugen Therapeutics, Prof...

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ORDI x AOCN Webinar series on Rare Disease in Pediatric Neurology

We are incredibly happy to share that AOCN, Association of Child Neurology and ORDI, Organization for Rare Diseases India have planned a series of weekend Symposia on “Rare disease in...

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To commemorate the #internationalpompe day, @NEWX and @ORDI bring to you an exclusive coverage on current issues, management, and treatment approaches of Pompe Disease in India

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International Pompe Day

With NO support from the government, a faulty gene puts families with #Rarediseases in India, in a never-ending odyssey! Meet the Pompe Warriors, 2 Different Lives, and their unique stories....

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On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

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On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

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