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We, the Rare Disease Community members, Patients, and Caretakers stand together to salute our nation’s independence day! We express our gratitude for the support and solidarity that the Rare Disease...
On global ALS awareness day june 21st June, Crafted a small clip to create awareness and to launch the promo of the movie “dear zindagi” of our upcoming ALS Care...
Glad to share that today I participated in a #PanelDiscussion on #ChangingScenarioinMuscularDystrophyTreatment held by #MINDTrust (Mobility in Dystrophy, #Kerala). I was joined by Dr. Arun Shastry of Hanugen Therapeutics, Prof...
We are incredibly happy to share that AOCN, Association of Child Neurology and ORDI, Organization for Rare Diseases India have planned a series of weekend Symposia on “Rare disease in...