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With NO support from the government, a faulty gene puts families with #Rarediseases in India, in a never-ending odyssey! Meet the Pompe Warriors, 2 Different Lives, and their unique stories....
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Meet the Pompe Warriors, 2 Different Lives, and their unique stories. They chose to thrive with passion, love, and hope besides surviving the error in #chromosome17. Watch the heart-rendering short...
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Prasanna Shirol currently serves as the Co-founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India. He has been instrumental...
Prasanna Shirol whose daughter suffers from a rare disease called Pompe, used his experience and knowledge in establishing rare disease centres in hospitals across India. Click below link:...
