Gallery

Watch NewX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

https://youtu.be/KnZiSIhQGlE ...

Watch the NewsX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

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The Burden of Rare Diseases

Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support...

Meet Manish Gore, FSGS/Alport Syndrome Warrior, and Rare Disease Advocate for ORDI talk on why awareness and early intervention is important

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Gene therapy started at Baptist Hospital Bangalore

Congratulations to the entire team. Gene therapy started to Baby Fatima at Baptist Hospital...

Virtual Rare Disease Consultation

East Region Virtual Rare Disease Consultation on 12th December 2020 from 10:00 am to 2:00 pm...

PPHF Rare disease patients’ story

The video on rare diseases aims at familiarizing key decision makers, implementers, healthcare professionals, resource providers and the whole community to rare diseases through the patient’s lens and make them...