India’s first Pompe Patient Nidhi Shirol , Sharada Shirol during Dharana to appeal for Treatment to Govt of Karnataka in Kasturi NewsLSD (Rare Disease) Patients appeal for Treatment to Govt...
Janashri TV channel Media Coverage of Patients Peace protest in...
Samaya TV coverage during Press Meet -Appeal to Karnatka Govt by Rare Disease patients in...
First annual Patients Advocacy Groups (PAGs) Meeting organized at MS Ramaiah Hospital, Bangalore on 31st Aug, 2014. More than 20 PAGs from all over India participated in the event in-person...
Raising public awareness about rare diseases and genetics is part of the core mission of ORDI. A marathon event was organized as part of the annual celebrity Mumbai Marathon where...
ORDI founder was a panelist at the World Orphan Drugs Asia Conference in Singapore, June...
ORDI in partnership with the PID society observed world immunology day at a one-day symposium on Primary Immuno Deficiencies with guest lectures by experts including one from...
ORDI was launched at a formal ceremony at the constitution club of India, New Delhi and was inaugurated by Dr. K Vijayraghavan, secretary of the department of Biotechnology, India and...
Speaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate....
About Pompe- A programme by Udaya TV – Sanjeevini Program with Prasanna Shirol and Daughter Nidhi who is suffering from...
