Video Gallery

ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 01

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Race For 7 – 2022 – Live Video – Bangalore – Karnataka

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Meet Prasanna Shirol, Founder and President of the Organization For Rare Diseases India.

Link For The Original Site:-...

Celebrating 75th Independence Day With ORDI.

We, the Rare Disease Community members, Patients, and Caretakers stand together to salute our nation’s independence day! We express our gratitude for the support and solidarity that the Rare Disease...

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Global ALS Awareness Day June 21st

On global ALS awareness day june 21st June, Crafted a small clip to create awareness and to launch the promo of the movie “dear zindagi” of our upcoming ALS Care...

Scientific Advisor of ORDI Dr Sudheendra Rao had participated in a Panel Discussion on Changing Scenario in Muscular Dystrophy Treatment held by Mind Trust

Glad to share that today I participated in a #PanelDiscussion on #ChangingScenarioinMuscularDystrophyTreatment held by #MINDTrust (Mobility in Dystrophy, #Kerala). I was joined by Dr. Arun Shastry of Hanugen Therapeutics, Prof...

ORDI x AOCN Webinar series on Rare Disease in Pediatric Neurology

We are incredibly happy to share that AOCN, Association of Child Neurology and ORDI, Organization for Rare Diseases India have planned a series of weekend Symposia on “Rare disease in...

To commemorate the #internationalpompe day, @NEWX and @ORDI bring to you an exclusive coverage on current issues, management, and treatment approaches of Pompe Disease in India

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International Pompe Day

With NO support from the government, a faulty gene puts families with #Rarediseases in India, in a never-ending odyssey! Meet the Pompe Warriors, 2 Different Lives, and their unique stories....