Video Gallery

On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

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On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

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With little support from the government, a faulty gene puts families with #Rarediseases in India, in a never-ending odyssey!

Meet the Pompe Warriors, 2 Different Lives, and their unique stories. They chose to thrive with passion, love, and hope besides surviving the error in #chromosome17. Watch the heart-rendering short...

One of our Gaucher patient from Bengaluru who is on treatment now selected for Karnataka under 16 Cricket Team . What a proud moment for Rare Disease community

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Interview with Snigdha

Prasanna Shirol currently serves as the Co-founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India. He has been instrumental...

Watch how Mr. Shirol used his experience and knowledge in establishing rare disease centres in hospitals across India.

Prasanna Shirol whose daughter suffers from a rare disease called Pompe, used his experience and knowledge in establishing rare disease centres in hospitals across India. Click below link:...

Racefor7 2021 Event

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Lalith suffering from pompe seeking treatment from Government

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Watch NewX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

https://youtu.be/KnZiSIhQGlE ...

Watch the NewsX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

...

On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

On International Pompe Day, Pompe Foundation presents a captivating session on ‘Pompe: A rare disease”.

With little support from the government, a faulty gene puts families with #Rarediseases in India, in a never-ending odyssey!

One of our Gaucher patient from Bengaluru who is on treatment now selected for Karnataka under 16 Cricket Team . What a proud moment for Rare Disease community

Interview with Snigdha

Watch how Mr. Shirol used his experience and knowledge in establishing rare disease centres in hospitals across India.

Racefor7 2021 Event

Lalith suffering from pompe seeking treatment from Government

Watch NewX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

Watch the NewsX A-List Interview of Mr. Prasanna Shirol; the story of ORDI that begins from going Pillar to Post for his daughter’s undiagnosed Rare Condition until he chooses the path to Rare Advocacy.

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