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The Burden of Rare Diseases

Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support...

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Meet Manish Gore, FSGS/Alport Syndrome Warrior, and Rare Disease Advocate for ORDI talk on why awareness and early intervention is important

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Virtual Rare Disease Consultation

East Region Virtual Rare Disease Consultation on 12th December 2020 from 10:00 am to 2:00 pm...

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PPHF Rare disease patients’ story

The video on rare diseases aims at familiarizing key decision makers, implementers, healthcare professionals, resource providers and the whole community to rare diseases through the patient’s lens and make them...

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Rare Disease Consultation: Bluprint for Rare Diseases in India

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4th Pediatric Bioethics

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ORDI Video

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This ORDI Awareness Video

This ORDI Awareness Video is sponsored by Path Partner and Produced by...

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Fund raising initiative by Milaap to support ORDI activities.

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Can Inspire by C Pallavi Rao Narvekar with Prasanna Shirol

On this episode, Pallavi chats with Prasanna Shirol about his daughter, Nidhi’s extremely rare disease, Pompe. Here’s an unbelievable story of the unimaginable. Can Inspire is Production of WYN Studio....

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