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Years with Cystic Fibrosis

I vaguely remember my childhood and I remember the episode of breathlessness, coughing, getting tired, waking up early and lot of stomach upset. And in my school years, I remember few...

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My Opinion: By Mr. Samir Sethi – President IRSF (Indian Rett Syndrome Foundation) – On order drugs (Price Control) amendment order 2019

I think this is a positive move of the Government. We know that pharma companies have been shying from entering the Indian market specifically with their new formulations and molecules...

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Towards Enabling Precision Medicine Cohort Studies at the Community Level

– Dr. Harsha K Rajasimha Co-Founder and Board Director, Organization for Rare Diseases India. Precision medicine paradigm is all about targeting medicines to patient cohorts that are most likely to...

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No Human Life Should Be Judged By A Statistic

I do believe that life comes to a full circle, as if some mysterious writer called God were penning down the twists and turns of our life. For me, it...

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