ORDI – Excecutive Director – Mr Prasanna Shirol was a panalist in Asia Pacific Patient Innovation Summit 2021. Topic of the India Hub : “Establishment and governance of patient groups” ...
The event was held virtually, uniting over 4,000 participants from 200 cities across the country, to raise their voices for the rare disease community. BENGALURU : To raise awareness on...
Click Below Link: https://www.linkedin.com/pulse/rare-disease-day-india-7-reasons-rejoice-arjun-gupta/?trackingId= The first Rare Disease day was observed by EURODIS and many other nations on 29th February 2008 to raise awareness for rare diseases. The date was very thoughtfully...
Our executive Director – Mr Prasanna Shirol participated as a panalist in “Rare Disease Day-2021” Online “CME” 28th feb 2021. Organised by Govt Medical Collge – Kozhikode ( department of...
ORDI Featured in an Article written by Dr Girish Katta Arogyavani Section of Udayvani Kannada News Paper in account of World Rare Disease...
Click Below Link: https://www.deccanherald.com/science-and-environment/rare-disease-day-health-advocacy-groups-press-for-govt-policy-say-india-s-numbers-unknown-955970.html...
Click Below Link: https://www.asbmb.org/asbmb-today/people/022521/raising-awareness-and-funding-for-pompe-disease ike most new parents, Prasanna and Sharada Shirol were over the moon when their daughter Nidhi was born in 1999. Their firstborn and ultimately only child,...
