On this episode, Pallavi chats with Prasanna Shirol about his daughter, Nidhi’s extremely rare disease, Pompe. Here’s an unbelievable story of the unimaginable. Can Inspire is Production of WYN Studio....
Good news and a novel FDA approved treatment for MPS- I Homologous stem cell therapy. Read more: https://www.globenewswire.com/news-release/2020/07/20/2064241/0/en/Orchard-Therapeutics-Announces-Orphan-Drug-and-Rare-Pediatric-Disease-Designations-for-OTL-203-for-the-Treatment-of-MPS-I.html #RareDisease #rayofhope #OrphanDrug...
An article from ” @ The Hindu” today on the scarcity/ unavailability of drugs for #RareDisease patients who are facing loss of #accesstomedicines due to #COVID; supply interruption of #importeddrugs is a threat to...
On the occasion of 7th DNA Day of VIT, 14th March 2020 by Department of Biomedical Sciences, Our Founder Director, Mr. Prasanna Shirol was invited to inaugurate the event as...
Organization for Rare Diseases India (ORDI) has highlighted the importance of creating awareness on Mucopolysaccharidosis (MPS), which is a category of a rare disease. MPS is a part of a...
The Organisation for Rare Diseases India (ORDI), a not for profit organisation committed to address the challenges of rare disease patients and their families, in association with JSS Academy of...
Kochi: The Central government informed the Kerala High Court that it has sanctioned Kerala Rs 1.5 crore for the treatment of people suffering from rare genetic diseases. The fund has...
