Bangalore, February 19, 2020: The Organization for Rare Diseases India (ORDI), a not for profit organization committed to addressing the challenges of rare disease patients and their families, today announced...
Need for comprehensive Rare Disease Policy says ORDI · Event to be held in 20 Indian cities · Race for 7 scheduled on February 23, 2020 (SUNDAY ) at 6:30AM...
The Vice-President, who visited the Hyderabad-based CCMB, referred to the novel-strain of Coronavirus in China and pointed out that the disease was spreading across countries and is threatening to become...
India needs to make significant investments in R&D, policy reforms, and measures to enable affordability and accessibility of medicines and healthcare to manage the burden posed by rare diseases By Usha...
With the significant burden imposed by the life-threatening (mostly progressing) rare diseases, they present a fundamental threat to the health systems. This requires a streamlined approach to ensure a timely...
Prasanna Shirol- Co founder and Director represented ORDI in Roundtable Discussion on Rare Diseases Policy -Deliberating the way forward on 27th July 2019 at India Habitat Centre, New Delhi organized...
Nine Individuals and Organizations from Around the World will be Recognized for Their Positive Impact on the Rare Disease Community, Prasanna Shirol has beed awarded a “Rare Champion of Hope” ...
Rare diseases are severe and chronic illnesses and are often life-threatening. Patients suffering from rare diseases, especially Lysosomal Storage Disorders (LSDs), often lead a very incapacitating life With the new...
