Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organised on “World Rare Disease Day” on 28th February 2021 at 6.30 am....
Former India goalkeeper Prasanta Dora, who made a name for himself while playing for big three clubs of Kolkata Maidan, died on Tuesday. He was 44 and is survived by...
Congratulations to the entire team. Gene therapy started to Baby Fatima at Baptist Hospital...
On this episode, Pallavi chats with Prasanna Shirol about his daughter, Nidhi’s extremely rare disease, Pompe. Here’s an unbelievable story of the unimaginable. Can Inspire is Production of WYN Studio....
Good news and a novel FDA approved treatment for MPS- I Homologous stem cell therapy. Read more: https://www.globenewswire.com/news-release/2020/07/20/2064241/0/en/Orchard-Therapeutics-Announces-Orphan-Drug-and-Rare-Pediatric-Disease-Designations-for-OTL-203-for-the-Treatment-of-MPS-I.html #RareDisease #rayofhope #OrphanDrug...
An article from ” @ The Hindu” today on the scarcity/ unavailability of drugs for #RareDisease patients who are facing loss of #accesstomedicines due to #COVID; supply interruption of #importeddrugs is a threat to...
