Nine Individuals and Organizations from Around the World will be Recognized for Their Positive Impact on the Rare Disease Community, Prasanna Shirol has beed awarded a “Rare Champion of Hope” ...
Rare diseases are severe and chronic illnesses and are often life-threatening. Patients suffering from rare diseases, especially Lysosomal Storage Disorders (LSDs), often lead a very incapacitating life With the new...
It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us don’t know much about rare diseases,...
New Delhi [India], Mar 14 (ANI): It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible. While most of us...
Changemaker – Social Transformation They make a difference where it truly matters — transforming the lives of the marginalised and the downtrodden. Bringing about change — both behavioural and attitudinal...
PSG Hospitals organise marathon to create awareness on rare diseases By SimpliCity News Team Mar 03, 2019 05:59 PM Coimbatore : To create awareness on 7000 rare diseases, PSG Hospitals organised...
As the Department of Health and Family Welfare pussyfoots on funding a rare disease policy, 70 million Indians grapple with lack of expert doctors, prohibitively expensive drugs and scant research...
Chennai: Life was all well for Zoyeb Mohamed Zia until the age of 12. He was a footballer, swimmer and speaker. However, dawn of the doom’s day marked an end...
