Prasanna Shirol Updated on January 06, 2019 Centre fails patients of rare diseases Promises are futile if they fail to deliver. When the National Policy on Rare Diseases was introduced in 2017,...
One of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives of persons with rare disease. With discrimination rife...
A 10-member committee, formed to draft a revised policy, has not held a single meeting yet More than 70 million people across India suffering from rare diseases do not have...
The policy was approved in May 2018 but no patients have received aid under its provisions. Now the government wants to reframe it. Seven-year-old girl with fibrodysplasia ossificans progressiva, a...
The Central government has filed an affidavit in the Delhi High Court, underlying need to re-frame the policy for rare diseases which was finalised and approved last year. The Centre...
The Central government has filed an affidavit in the Delhi High Court, underlying need to re-frame the policy for rare diseases which was finalised and approved last year. The Centre...
The Union health ministry has cited bureaucratic barriers and high costs to renege on its pledge to help treat patients, mostly children, with rare and expensive-to-treat diseases through a Rs...
One of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives of persons with rare disease....
Karnataka is the only state to have a Centre of Excellence for Rare Diseases at the government-run Indira Gandhi Institute of Child Health in Bengaluru. By Suraksha P Express News Service...
