If the Indian government is serious about its commitment to realise the rights of its citizens to universal and equitable health care, it cannot ignore rare diseases. The draft National...
A rare disease is any condition which affects very few individuals in a vast population. Though at present there is no universal definition for it. World Health Organization (W.H.O.) has...
Mainline Coverages Vernaculars- Listings Post Event Race for 7 Online Coverage 1. https://globalgenes.org/raredaily/organization-for-rare-diseases-india-celebrates-world-rare-disease-day-with-race-for-7-marathon/ 2. https://citynewsforu.wordpress.com/ 3....
Race for 7- Race Against Rare Diseases Race for 7 to make the voice of rare https://healthsavy.com/product/doxycycline/ diseases heard Bengaluru, February 19, 2016: The Organization for Rare Diseases India (ORDI),...
Over two decades ago, Ravi and Nirmala from Bengaluru gave birth to their second child, a daughter who they named Dhanya. While they were ecstatic to welcome a new member...
BENGALURU: The Organization for Rare Diseases India (ORDI) would organise Race for 7, a unique first of its kind event to commemorate Rare Disease Day and draw attention to the...
To draw attention to the needs of patients with rare diseases in India, the Organisation for Rare Diseases India (ORDI) will organise ‘Race for 7’, a 7-km run on February...
Four-year-old Kusuma of Subramanyapura is confined to the wheelchair, her body reduced to nothing more than an eggshell. When she was one, she developed Fibro Ossificans Progressiva (FOP), a genetic...
