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Rare Disease Diagnosis & Treatment: Rare Disease Girls Father Helps Thousands | The Better India

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News Letter May 2022

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Government’s crowdfunding plan for treating patients with rare diseases yet to take off

The total amount of donations channelled to the rare diseases portal is Rs 1.18 lakh till date, Bharti Pravin Pawar, minister of state for health and family welfare, told the...

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News Letter April 2022

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Off Balance

In places like Saharanpur and Buldhana, a rare genetic disease has been taking away control of bodies, lives and livelihoods from entire neighbourhoods. Against all odds, a few scientists and...

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MedGenome launches AI-enabled VarMiner to detect genetic variants for rare diseases, inherited cancers

The genomic research company claims that VarMiner is powered by certain tools and databases to provide deeper insights into genetics with extreme accuracy and efficiency. MedGenome Labs, a genomics research...

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ORDI March 2022 Newsletter

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Race For 7 Event Consolidated Media Report

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Race For 7 Event Media Reports

1 The Hans India https://www.thehansindia.com/news/cities/bengaluru/racefor7-2022-sees-heart-warming-turnout-in-support-of-rare-diseases-731133 2 News Experts https://www.newsexperts.in/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 3 The Hindu https://www.thehindu.com/news/national/karnataka/top-karnataka-news-developments-today/article65089636.ece 4 Bangalore Mirror https://bangaloremirror.indiatimes.com/bangalore/cover-story/rare-window/articleshow/89877460.cms 5 APN News https://www.apnnews.com/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 6 Business News This week http://businessnewsthisweek.com/health/racefor7-2022-sees-heartwarming-turnout-in-support-of-rare-diseases/ 7 Online Media...

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Project Prarambh: Initiative by IIDE to Digitally Transform the Non-Profit Sector

Swamy C. J., the Head of Operations at ORD (Organization for Rare Diseases) India, had this to say about their experience as a part of the project, “Since ORD focuses...

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