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Important Topic Raised in Such Detail in the Parliament… Hope the Government Gives Important to these Issues too…

आज लोक सभा में लाईलाज बीमारी मस्कुलर एट्रोफी व डिस्ट्राफी से झुंझ रहे बीमार बच्चो व वयस्को की समस्या व उनके इलाज की मांग को लेकर मामला उठाया,स्पाइन मस्कुलर एट्रोफी...

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Imtiaz Jaleel Raised The Issue Of People Suffering With Rare Diseases Are Excluded From Govt Schemes

https://youtu.be/VOCwHi0p9OM Link For The Original Video:-...

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Rare Heart Surgery Adds Feather To GNRC Cap

GUWAHATI: A complicated and rare bicuspid aortic valve surgery on a 41-year old woman of the state was successfully carried out recently at GNRC Hospitals here, which is the first...

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Early Screening or Detection Makes Metabolic Disorders In Babies Manageable: Experts

Inborn error of metabolism (IEM) is a spectrum of diseases that can affect the normal metabolism in children, said doctors. Screening of newborns or screening of parents during the pre-natal...

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HC Refers Boy With Rare Disease To IGICH

The High Court of Karnataka on Friday passed an interim order to shift a toddler afflicted with Spinal Muscular Atrophy (SMA) Type 1, a rare disease, to the Indira Gandhi...

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Article On ORDI in Kannada(Karma Veera Magazine)

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Personalized Genomics Will Become An Integral Part Of Customized Healthcare: Subhamoy Dastidar

In an exclusive interaction with BW Health care world, Subhamoy Dastidar, Co-Founder & Director, Lilac Insights, speaks about the firm and more. Excerpts: Tell us about the recent trends in...

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National Crowdfunding Portal For Rare Diseases Fails To Meet Expectations Of Patients And Caregivers

Aimed at raising money for treatment of rare diseases that need expensive and life-long treatment and affect a small percentage of the population     News:- 1)Platform launched on August...

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SATB2-Associated Syndrome Awareness Day – 22nd August 2021

We appreciate the kind assistance of Ms.Shruti Mohanty, Ms.Tulisa Samantaray, and Ms.Ushneet Chhabra, MSc BMG, VIT, Vellore for the posters on SATB2 Associated Syndrome Awareness...

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Smith Kingsmore Syndrome Awareness DAY – 15th August 21

We acknowledge the kind assistance of Ms. Poorva Samdani,Ms. Vaishnavi. R, MSc. BMG, VIT, Vellore for the poster on Smith Kingsmore Syndrome Awareness...

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