According to data from the Union Ministry of Health and Family Welfare, the IMR was 21 per 1,000 live births in Karnataka in 2019, whereas the all-India average was 30....
The Health department has distributed drugs for Spinal Muscular Atrophy (SMA) free of cost to 14 children with the rare disease, Health Minister, Veena George, has said in a statement....
Organization for Rare Diseases India (ORDI) and Tata Institute for Genetics and Society (TIGS) have exchanged the MOU. TIGS Director Dr.Rakesh Sharma and ORDI’s CO-founder & Executive Directr Mr.Prasanna Shirol,...
Of all cases of rare diseases across the globe, around one-third occur in India. Yet, these diseases—‘rare’ because they affect a relatively small number of people—are hardly given attention in...
Since the diagnosis, on an average, the parents have been spending close to ₹50,000 every month and Palaash has now been advised to undergo surgery that will cost close to ₹20 lakh....
With no domestic manufacturers developing drugs for people ailing with rare genetic diseases in India which is home to 8 crore such patients, the Government is working on a strategy...
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The levels of BNIP3, a protein implicated in muscle fiber atrophy and increased autophagy — two features of late-onset Pompe disease (LOPD) — are increased in muscle samples from LOPD patients relative...
A 21-year-old fighting battle with a rare genetic disease calls for an inclusive infrastructure in schools and colleges for the disabled. Access to education for disabled students has become challenging....
