The Delhi High Court has recently voiced their disapproval of the continued neglect for the treatment of rare diseases. The Court took issue with the fact that funding for treatment...
The Delhi High Court has directed the Centre to issue communications to the All India Institute of Medical Sciences (AIIMS) and Centres for Excellence established across the Country, for starting...
Two children have died of chickenpox and three others are taking treatment for it at Nalwar Station Thanda in Kalaburagi district. Leprosy situation in India Leprosy, caused by the bacteria...
New Delhi, Feb 2 (PTI) The Delhi High Court has directed the Centre to communicate to the All India Institute of Medical Sciences (AIIMS) as well as to other Centers...
The International Rare Diseases Research Consortium (IRDiRC) is a global collaborative initiative launched in 2011, aimed at tackling rare diseases through research. Here, we summarize IRDiRC’s vision and goals and...
India, which shares 17% of global population, has finally had its first dedicated policy on making treatment of rare diseases accessible and affordable. by Dr. Dipanjana Datta While rare diseases are...
When his daughter, Meredith Huml, was diagnosed — finally — with facioscapulohumeral (FSHD) muscular dystrophy in 2004, Raymond Huml immediately jumped into action, researching everything he could about the disease and reaching...
आज लोक सभा में लाईलाज बीमारी मस्कुलर एट्रोफी व डिस्ट्राफी से झुंझ रहे बीमार बच्चो व वयस्को की समस्या व उनके इलाज की मांग को लेकर मामला उठाया,स्पाइन मस्कुलर एट्रोफी...
https://youtu.be/VOCwHi0p9OM Link For The Original Video:-...
GUWAHATI: A complicated and rare bicuspid aortic valve surgery on a 41-year old woman of the state was successfully carried out recently at GNRC Hospitals here, which is the first...
