Dr Sudheendra Rao N R from the Organization for Rare Diseases India reveals that approximately 70 million are affected by rare diseases and a majority of them are children. Rare...
As Russian President Vladimir Putin concludes his visit to India, the Organisation for Rare Diseases India (Ordi), a national umbrella organisation representing patients with rare diseases, has asked the Centre...
Samagra Shiksha Abhiyan offers home-based learning for students with severe disabilities, yet problems in access, awareness, and support remain. Thirteen-year-old Rohan (name changed), a little shy and very happy, envelops his...
As the Central Drugs Standard Control Organization (CDSCO) considers introducing data exclusivity provisions into India’s drug regulatory laws, healthcare activists warned that the move could delay access to lifesaving generic...
Mangaluru, Feb 21: The Organization for Rare Diseases India (ORDI) is set to host the 10th edition of its flagship event, RaceFor7, in Mangaluru for the first time. This symbolic run...
The Organization for Rare Diseases India (ORDI), a national umbrella organization representing the collective voice of all patients with rare diseases in India has launched Savemylife, a crowdfunding platform to...
Dr Meenakshi Bhat, a pioneering clinical geneticist at the Centre for Human Genetics in Bangalore, and a long-time supporter of the rare disease community urged the government to make it...
